Not The Best News
I just wanted to share this post as a request for prayers. I apologize in advance that this post won’t be as much of a masterpiece as prior have been. It’s more of an update and request for prayers.
We went back to Houston on 5/6, and my PET scan showed that I had cancer progression, which meant that I needed to drop out of the clinical trial. The cancer went to multiple new areas. It progressed in the lung nodules, liver and skeleton, and it is now in my left breast and left axillary node, left soft tissue protuberance on my left temple, and in some areas surrounding my mouth.
The most concerning part of all this is that we have no game plan that we can currently act on to keep the cancer under control. I can’t do chemotherapy right now because the trial drug (BET inhibitor) makes your platelets very low, which it did with mine, and my platelets are taking a while to recover. I can’t start another targeted therapy because there are no other open trials, and insurance will not approve anything for this orphan cancer. We are trying to obtain any of four drugs that are either investigational or approved for other conditions via “compassionate use”. All of these agents have demonstrated some form of efficacy acting on this cancer, but the waiting periods for getting these drugs through compassionate use is so variable after applying. We applied for some of these compassionate care drugs over 3 weeks ago, but we are still waiting.
But through all this, I can’t help but think that this is the hour God steps in and says “now you will see how powerful I am and how I will completely eradicate this cancer,” no medicine confounders or anything. When there is seemingly no hope, maybe this is the n-th hour when God steps up and does miracles in the supernatural way. Up until now we have been praying for suPRAnatural healing where God heals through the doctors and medicine, but maybe now it’s time for God to reveal His suPERnatural healing where it’s Him and Him alone that takes the cancer all away. So friends, would you please pray with us that the suPERnatural healing would be something that God would grant through His Son Jesus Christ who bore all our sins.